Year 2018 / Volume 110 / Number 5
Editorial
Online social networks and inflammatory bowel disease

271-273

DOI: 10.17235/reed.2018.5496/2018

Cristóbal de la Coba Ortiz, Julio Mayol,

Abstract
Enrolling patients for epidemiologic studies represents a challenge for researchers. Those who use traditional approaches, including in-person interviews and telephone or mail surveys, obtain increasingly lower participations. In the study by Martín-Fernández et al., the authors obtained 44 responses via mail and forums, and then 376 responses in just five days via Facebook. Online social networks (OSN) provide a unique opportunity to obtain epidemiologic data with resource savings and presumably collecting higher-quality information. However, disadvantages include loss of anonimity, selection and sampling biases, social acceptance bias, behavior changes, and lack of representativity.
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References
1. Martín Fernández C, Maroto Martín C, Fernández Salazar L. Evaluación mediante las redes sociales de la información con la que cuentan los pacientes con EII. Revista Española de Enfermedades Digestivas 2018.
2. Ponce I. Monográfico: Redes Sociales. [Internet]. Madrid: Observatorio Tecnológico. Ministerio de Educación, Cultura y Deporte; 2012 [acceso 27 de enero de 2018]. Disponible en: http://recursostic.educacion.es/observatorio/web/ca/internet/web-20/1043-redes-sociales?start=1
3. Lenhart A, Purcell K, Smith A, et al. Social media and mobile internet use among teens and young adults [Internet]. Pew Internet.2010. Accessed 11 October 2014 from: http://www.pewinternet.org/2010/02/03/social-media-and-young-adults.
4. 8146.0 - Household Use of Information Technology, Australia, 2012-13. Canberra, Australia: Australian Bureau of Statistics (ABS); [2014-07-21]. Webcite http://www.abs.gov.au/ausstats/abs@.nsf/Lookup/8A12E6E0D07D36A0CA257C89000E3FB7?opendocument. The social and psychological impact of online social networking. Australian Psychological Society (APS); 2010. [2014-07-21]. Webcitehttp://www.psychology.org.au/publications/inpsych/2010/december/social/.
5. Tsitsika AK, Tzavela EC, Janikian M, et al. Online social networking in adolescence: patterns of use in six European countries and links with psychosocial functioning. J AdolescHealth 2014;55(1):141-7. doi: 10.1016/j.jadohealth.2013.11.010. Epub 2014 Mar 4.
6. Amon KL, Campbell AJ, Hawke C, et al. Facebook as a recruitment tool for adolescent health research: a systematic review. AcadPediatr 2014;14(5):439–447.e4. doi: 10.1016/j.acap.2014.05.049.
7. Mishra GD, Hockey R, Powers J, et al. Recruitment via the Internet and social networking sites: the 1989-1995 cohort of the Australian Longitudinal Study on Women's Health. J Med Internet Res 2014;16(12):e279. doi: 10.2196/jmir.3788.
8. Fox S, Jones S. The Social Life of Health Information. 2009. [2013-04-04]. Webcitehttp://www.pewinternet.org.Reports/2007/Information-Searches-
9. Dawson J. Doctors join patients in going online for health information. New Media Age 2010;7.
10. Eysenbach G. Medicine 2.0; social networking, collaboration, participation, apomediation, and openness. J Med Internet Res 2008;10:e22.
11. Chou WS, Hunt YM, Burke BD, et al. Social media use in the United States: implications for health communication. J Med Internet Res 2009;11:e48. doi: 10.2196/jmir.1249.
12. Van de Belt TH, Berben SA, Samsom M, et al. Use of social media by Western European hospitals: longitudinal study. J Med Internet Res 2012;1:e61.
13. Cline RJW, Haynes KM. Consumer health information seeking on the Internet: the state of the art. Health Educ Res 2011;16:671–92. https://doi.org/10.1093/her/16.6.671
14. Antheunis ML, Tates K, Nieboer TE. Patients' and health professionals' use of social media in health care: motives, barriers and expectations. PatientEducCouns 2013;92(3):426-31. doi: 10.1016/j.pec.2013.06.020.
15. Eysenbach G. Medicine 2.0: social networking, collaboration, participation, apomediation, and openness. J Med Internet Res 2008;10:e22. doi: 10.2196/jmir.1030.
16. Jackson BD, Gray K, Knowles SR, et al. EHealth Technologies in Inflammatory Bowel Disease: A Systematic Review. J Crohns Colitis 2016;10(9):1103-21. doi: 10.1093/ecco-jcc/jjw059.
17. Aguas M, Del Hoyo J, Faubel R, et al. Use of telemedicine in inflammatory bowel disease: a real monitoring option? Expert Rev GastroenterolHepatol 2016;10(8):879-81. doi: 10.1080/17474124.2016.1200464. Epub 2016 Jun 29.
18. Moorhead SA, Hazlett DE, Harrison L, et al. A new dimension of health care: systematic review of the uses, benefits, and limitations of social media for health communication. J Med Internet Res 2013;15(4):e85. doi: 10.2196/jmir.1933.
19. Tunnecliff J, Weiner J, Gaida JE, et al. Translating evidence to practice in the health professions: a randomized trial of Twitter vs Facebook. J Am Med Inform Assoc 2016. pii: ocw085. doi:10.1093/jamia/ocw085. [Epub ahead of print].
20. Roccetti M, Casari A, Marfia G. Inside chronic autoinmune disease communities: a social networks perspective to Crohn´s patient behavior and medical information. ACM 2015. DOI: http://dx.doi.org/10.1145/2808797.2808813.
21. Bian J, Yoshigoe K, Hicks A, et al. Mining Twitter to Assess the Public Perception of the "Internet of Things". PLoSOne 2016;11(7):e0158450. doi: 10.1371/journal.pone.0158450. eCollection 2016.
22. Choudhury M, Counts S, Horvitz E. Proceedings of the 5th Annual ACM Web Science conference. ACM; 2013a. Social media as a measurement tool of depression in populations; pp. 47–56.
23. Choudhury M, Gamon M, Counts S, et al. Predicting depression via social media; AAAI conference on Weblogs and Social Media.2013b.
24. Haimson 0, Ringland K, Simpson S, et al. Using Depression Analytics to Reduce Stigma via Social Media: BlueFriends. Proc iConference 2014: 1-5.
25. McManus K, Mallory EK, Goldfeder RL, et al. Mining Twitter Data to Improve Detection of Schizophrenia. AMIA Jt Summits Transl Sci Proc 2015 Mar 25;2015:122-6. eCollection 2015. PMID: 26306253.
26. Maroto Martin C, Martín-Fernández C, Fernández-Salazar L. Information and internet in inflammatory bowel disease. Rev ACAD 2017;33(4):180-6.
27. Mayol J, Dziakova J. Value of social media in advancing surgical research. BJS 2017;104:1753-5.
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de la Coba Ortiz C, Mayol J. Online social networks and inflammatory bowel disease. 5496/2018


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Publication history

Received: 27/01/2018

Accepted: 03/02/2018

Online First: 19/03/2018

Published: 27/04/2018

Article Online First time: 51 days

Article editing time: 90 days


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